Help JCCSG help others

$4,856 of $25,000 raised

raised by 35 people in 1 month

Two young women walked into one of the symposiums looked at each other and asked, "What are you doing here?" Turns out they are SISTERS and each of them had children with Crohn's or Colitis. They have never talked about it to each other. Their parents knew but wouldn't share with their daughters that all the grandchildren were affected. 

 

This true story illustrates some of the difficulties and stigma Crohn's disease or Ulcerative Colitis patients and their families are going through. 

 

Inflammatory Bowel Diseases, known as Crohn’s Disease and Ulcerative Colitis, are genetically complex (with Ashkenazi Jews having an incidence of the disease at 4-5 times the general population), chronic, with painful conditions that have debilitating physical and psychological effects. Prejudicial assumptions and confusion create even larger hurdles for patients who grapple with cultural and psychological stereotyping. Yet, patients try their best to have full lives and meet their responsibilities and the expectations of the community. Patients face special issues in coping with the symptoms and side effects of their disease. Because neither the cause nor a cure for these chronic conditions is yet known, one has to learn how to live with the complications that occur with the diseases. Combine this with the cloak of shame and secrecy surrounding any chronic and genetic disorder in the Jewish communities, and the outcomes for patients are truly calamitous and can be life-threatening.

 

The Jewish Crohn’s and Colitis Support Group (JCCSG) was founded in 2011 by a group of sufferers with its mission to provide Advocacy, Education, Help, Information, Medical referrals and Support to the people of the Orthodox Jewish community who are suffering from Crohn's disease and Ulcerative Colitis — to improve the quality of life of children and adults affected by these diseases, improve their medical attention, and to spread awareness within the community by breaking the ice and melt the stigma.

 

As we look back upon the year past, we are proud that we have made some significant accomplishments this year, We provided Medical referrals, Expedited appointments, for hundreds of people who reached out to us, We got huge discounts by specialists for the needy, we supplied information and support for over a thousand people and their families, we were able to spread our awareness, education and support mission in Crown Heights-Brooklyn NY, Baltimore MD, and Lakewood  NJ, while connecting with more doctors and hospitals throughout New York, New Jersey, Philadelphia and Maryland. In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention. We had a key role in passing the Crohn's & Colitis Fairness Act - NY State Restroom Access Act in Assembly and in Senate. 

 

While JCCSG is helping those who struggle, JCCSG is struggling financially. To continue and expanding our organization, we need the help of the community. Every dollar goes a long way. Please help us help others!

 

JCCSG is a recognized 501(c)3 Organization, All your donations are tax deductible

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$4,856 of $25,000 raised

raised by 35 people in 1 month

Created by

Yoely Drummer @ JCCSG
December 2016

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Rivka Katz donated

3 weeks ago $100.00

Clprog1 donated

3 weeks ago $50.00
In honor of YOELY DRUMMER!

Hagit Hertz donated

3 weeks ago $180.00

S Weiss donated

1 month ago $360.00

Moishemuch donated

1 month ago $18.00
In honor of Leah bas Nechama Dina

Anonymous donated

10 months ago $100.00
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Lipa Z donated

10 months ago $180.00
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10 months ago $120.00
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10 months ago $180.00
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Anonymous donated

10 months ago $4.00
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Anonymous donated

10 months ago $18.00

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10 months ago $50.00
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10 months ago $180.00
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10 months ago $360.00
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10 months ago $180.00
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EZZYUSA donated

10 months ago $36.00
In honor of ,לכבוד הר״ר יואל דרוממער שליט״א העסקן בצרכי ציבור,הקב"ה ישלם שכרכם

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